Two weeks ago today I had the procedure.
I suppose it was naive of me to think that I could skate through this unscathed. But that's human. We have to do what we need to do to get through the day.
It's not terrible, but I'm certainly feeling the effects of the radiation. I'm experiencing quite a bit of fatigue, especially in the early afternoon. I'm queasy as hell a good bit of the time. That's always a fun combination. And, unfortunately, I'm also experiencing some urinary problems.
I had a friend ask me what it felt like. I told him imagine sitting on a grapefruit. Now add a pretty good Urinary Tract Infection on top of that and you'll get the idea. Except that when you go to pee, you can't.
The hell of brachytherapy is that I haven't really hit the toxicity mark quite yet. I could have these side effects for the next 18 months, or they could go away tomorrow.
I vote for tomorrow. :)
I'm sure I'll feel better once I can get back in the water. I don't think it will happen this week as I still have a couple open wounds. Pool water and wounds. That's not a good combo.
I also had my first true 'cancer moment' this weekend.
We went to Spokane to see relatives. It probably was a little early for that much traveling, but both Suz and I needed the trip.
So, I'm sitting in Spokane in the parking lot of a supermarket with my brother-in-law, while Suz and her sister ran inside to get some ingredients for dinner when the nausea kicked into high gear. I fought it for as long as I could but the hand writing was on the wall. Had to have my bro (Thank you Jahn!!) drive me over to the edge of the black top. As sick as I was I was still being considerate. No one wants to watch a bald man yak in the middle of a Safeway parking lot.
The whole damn episode was just weird.
I'm crossing my fingers that those days are going to be behind me very soon.
I'm also in the 'whiny' stage of recovery. One of Suzanne's favorites. :)
That's where I am. I'll keep you posted.
Tuesday, August 2, 2011
Monday, July 25, 2011
And I'm back.
Well, mostly back. :)
Firstly, let me say that if you ever need a medical procedure done, Swedish hospitals in Seattle are excellent facilities. They have their 'act' together so to speak. If you have been fortunate enough not to have experienced this first-hand, you don't know how rare of a quality this is in today's modern medicine.
The procedure went fine. Much like, "Okay Mr. Moore, we are going to give you the anesthetic . . . Wake up! All done!"
That's my kind of procedure.
I've been sore for the last few days, and some of the usual side-effects that one would expect, but nothing too terrible. My chief complaints would be fatigue and nausea. Hopefully that will clear now that I'm off the antibiotics and some other meds.
Now we play the waiting game.
I'll be able to go back to 'light' swimming in the next week or so. No lawn mowing (aw shucks) for the next month or so, along with no motorcycle riding, or any kind of jarring activities. Gotta make sure those 'seeds' don't dislodge until they have time to heal and set properly.
Not that those are issues at the moment. I'm still not feeling quite good enough to ride anyway.
But all-in-all I'm on the mend.
I'll keep you posted.
Firstly, let me say that if you ever need a medical procedure done, Swedish hospitals in Seattle are excellent facilities. They have their 'act' together so to speak. If you have been fortunate enough not to have experienced this first-hand, you don't know how rare of a quality this is in today's modern medicine.
The procedure went fine. Much like, "Okay Mr. Moore, we are going to give you the anesthetic . . . Wake up! All done!"
That's my kind of procedure.
I've been sore for the last few days, and some of the usual side-effects that one would expect, but nothing too terrible. My chief complaints would be fatigue and nausea. Hopefully that will clear now that I'm off the antibiotics and some other meds.
Now we play the waiting game.
I'll be able to go back to 'light' swimming in the next week or so. No lawn mowing (aw shucks) for the next month or so, along with no motorcycle riding, or any kind of jarring activities. Gotta make sure those 'seeds' don't dislodge until they have time to heal and set properly.
Not that those are issues at the moment. I'm still not feeling quite good enough to ride anyway.
But all-in-all I'm on the mend.
I'll keep you posted.
Monday, July 18, 2011
Tomorrow is D-Day.
By this time tomorrow I should be about to check into the hospital for my little procedure.
For those that are interested, this is a fairly good article explaining exactly what's going to happen.
http://www.rmg.md/cancers/prostate/seed-implant/brachytherapy.htm
My job in all of this is to show up, and lie still while they slip the IV in the vein.
Then it's off to sleepy town!
And then wake up again after it's over. As I understand, the going to sleep part is easy. But sometimes the 'wakey-wakey' part is a problem.
Various people over the last few days have asked me if I'm nervous or anxious about the procedure.
Not really. I suppose I could work myself into a tizzy be imagining every horrible outcome there could be. Running that scenario over and over in my head until I was a basket case.
No thank you. Been there. Done that.
You know, we harp on people for living in the past and missing out on the present. And I'm sure we all know someone like that. But living in the future is no better. Well, it is if you fantasize an ideal future, but how many of us do that? No, we run every possible situation we can imagine, trying to 'prepare'. But reality is never as we imagine. So why go there?
That's what causes worry and anxiety.
Here's a 'Davidism'. (Feel free to use it so long as you credit me as the originator. :)) Worry is nothing more than fantasizing failure. Think about that for a minute.
The best words regarding worrying, and ones that I've probably posted before, are from the Dali Llama. "If a problem is fixable, if a situation is such that you can do something about it, then there is no need to worry. If it's not fixable, then there is no help in worrying. There is no benefit in worrying whatsoever."
I've heard him condense this to: "If there is a problem, and you can do something about it - no worries. If there is a problem and there is nothing you can do about it - there is no reason to worry."
So there you are, and here I am.
I'll post more when I get back from the other side.
See you soon.
For those that are interested, this is a fairly good article explaining exactly what's going to happen.
http://www.rmg.md/cancers/prostate/seed-implant/brachytherapy.htm
My job in all of this is to show up, and lie still while they slip the IV in the vein.
Then it's off to sleepy town!
And then wake up again after it's over. As I understand, the going to sleep part is easy. But sometimes the 'wakey-wakey' part is a problem.
Various people over the last few days have asked me if I'm nervous or anxious about the procedure.
Not really. I suppose I could work myself into a tizzy be imagining every horrible outcome there could be. Running that scenario over and over in my head until I was a basket case.
No thank you. Been there. Done that.
You know, we harp on people for living in the past and missing out on the present. And I'm sure we all know someone like that. But living in the future is no better. Well, it is if you fantasize an ideal future, but how many of us do that? No, we run every possible situation we can imagine, trying to 'prepare'. But reality is never as we imagine. So why go there?
That's what causes worry and anxiety.
Here's a 'Davidism'. (Feel free to use it so long as you credit me as the originator. :)) Worry is nothing more than fantasizing failure. Think about that for a minute.
The best words regarding worrying, and ones that I've probably posted before, are from the Dali Llama. "If a problem is fixable, if a situation is such that you can do something about it, then there is no need to worry. If it's not fixable, then there is no help in worrying. There is no benefit in worrying whatsoever."
I've heard him condense this to: "If there is a problem, and you can do something about it - no worries. If there is a problem and there is nothing you can do about it - there is no reason to worry."
So there you are, and here I am.
I'll post more when I get back from the other side.
See you soon.
Tuesday, July 12, 2011
And we start the preparations
I just hung up from talking to the pre-op nurse at Swedish.
That's always a bit of fun.
Oh sure, it starts out fine, but as I've said before, after I list my litany of medications and conditions the mood changes. Trust me on this, when the medical community as a whole starts sympathizing with you, you know you're screwed.
Which reminds me, last week I had lunch with one of my dearest friends. We've known each other since we were 11 years old. A few years ago I had her beat on the medical front. She was all healthy and I was broken. Ha!
Now the situations are reversed. About a year ago she found a lump that she thought was breast cancer. Turns out it wasn't. It was a melanoma. And over the next few months we watched as this 'little lump' that was going to be no big deal turned into a very big deal. The melanoma was systemic, and had metastasized. Tumors were showing regularly, and they put her on every med they could without results. Then the clinical trials started.
A few months ago they found two tumors in her brain. Before they could do anything about them, one ruptured. She suffered a pretty major stroke, then then an episode of cerebral salt-wasting syndrome. Even she didn't think she would leave the hospital. But she fought, and here she was sitting across from me at a small cafe in Tukwilla, discussing the joys of the human body. Just this week her oncologist had given her the news that there was not much more they could do for her, and that she and her family should prepare for the inevitable.
That's light lunch conversation, let me tell you.
So I do the only thing I can do for her. I try to make her laugh.
"Annie, I'll bet I know a word that you've come to hate hearing."
"What's that?"
"I'll bet you hate it when you're called an 'inspiration'."
She paused, blinked, and burst out laughing. "Oh my God!! I know!"
"Get that a lot, do you?"
She giggled again. "Oh honey . . . I hear it everyday. It's beginning to wear thin. But you with your swimming and everything, I'll bet you hear it too."
I smiled back. "Oh yeah. I hear it all the time."
"Does it bother you?" she asked.
"Yes. And I'll tel you why. Because when someone says 'Oh, you are such an inspiration!' it translates as 'Oh my God. You are so fucked. And here you are, living, doing things that I would never do, and you're sick and it kind of makes me feel shitty like I'm wasting my life and I'm so exhausted all the time and you're also beginning to make me feel guilty but I can't be mad at you because you're sick and I don't want to hurt your feelings so I'll say you inspire me. But really, it means you're fucked and I'm not.' You never hear anyone say that to someone healthy, or has all their body parts."
She paused, looked me in the eye, and burst out laughing.
"Oh my God! That's exactly what that means!"
I laughed. "I know! Bastards! I know I'm screwed. Don't remind me."
We spent the next couple of hours talking about her challenges, the future, the past, and what the hell it all means.
Unfortunately we didn't come up with any answers.
But it made me realize once again that in the grand scheme of things I have it pretty darned good. I live in an age where my health issues may not be able to be cured, but they can be controlled. I'm damned lucky.
It doesn't take much to get yourself off the pity-pot. Sometimes all you have to do is open your eyes and look at the person sitting across from you.
So bring on the implants! Let's get this show on the road so I can look at it in my rear-view mirror. Like my Dad used to say, a job well begun is half done.
Let's rock.
That's always a bit of fun.
Oh sure, it starts out fine, but as I've said before, after I list my litany of medications and conditions the mood changes. Trust me on this, when the medical community as a whole starts sympathizing with you, you know you're screwed.
Which reminds me, last week I had lunch with one of my dearest friends. We've known each other since we were 11 years old. A few years ago I had her beat on the medical front. She was all healthy and I was broken. Ha!
Now the situations are reversed. About a year ago she found a lump that she thought was breast cancer. Turns out it wasn't. It was a melanoma. And over the next few months we watched as this 'little lump' that was going to be no big deal turned into a very big deal. The melanoma was systemic, and had metastasized. Tumors were showing regularly, and they put her on every med they could without results. Then the clinical trials started.
A few months ago they found two tumors in her brain. Before they could do anything about them, one ruptured. She suffered a pretty major stroke, then then an episode of cerebral salt-wasting syndrome. Even she didn't think she would leave the hospital. But she fought, and here she was sitting across from me at a small cafe in Tukwilla, discussing the joys of the human body. Just this week her oncologist had given her the news that there was not much more they could do for her, and that she and her family should prepare for the inevitable.
That's light lunch conversation, let me tell you.
So I do the only thing I can do for her. I try to make her laugh.
"Annie, I'll bet I know a word that you've come to hate hearing."
"What's that?"
"I'll bet you hate it when you're called an 'inspiration'."
She paused, blinked, and burst out laughing. "Oh my God!! I know!"
"Get that a lot, do you?"
She giggled again. "Oh honey . . . I hear it everyday. It's beginning to wear thin. But you with your swimming and everything, I'll bet you hear it too."
I smiled back. "Oh yeah. I hear it all the time."
"Does it bother you?" she asked.
"Yes. And I'll tel you why. Because when someone says 'Oh, you are such an inspiration!' it translates as 'Oh my God. You are so fucked. And here you are, living, doing things that I would never do, and you're sick and it kind of makes me feel shitty like I'm wasting my life and I'm so exhausted all the time and you're also beginning to make me feel guilty but I can't be mad at you because you're sick and I don't want to hurt your feelings so I'll say you inspire me. But really, it means you're fucked and I'm not.' You never hear anyone say that to someone healthy, or has all their body parts."
She paused, looked me in the eye, and burst out laughing.
"Oh my God! That's exactly what that means!"
I laughed. "I know! Bastards! I know I'm screwed. Don't remind me."
We spent the next couple of hours talking about her challenges, the future, the past, and what the hell it all means.
Unfortunately we didn't come up with any answers.
But it made me realize once again that in the grand scheme of things I have it pretty darned good. I live in an age where my health issues may not be able to be cured, but they can be controlled. I'm damned lucky.
It doesn't take much to get yourself off the pity-pot. Sometimes all you have to do is open your eyes and look at the person sitting across from you.
So bring on the implants! Let's get this show on the road so I can look at it in my rear-view mirror. Like my Dad used to say, a job well begun is half done.
Let's rock.
Thursday, July 7, 2011
Two weeks until treatment
I returned a few days ago from a 2600 mile, 10 day motorcycle trip down to San Francisco where I swam the "Escape from Alcatraz" event, and then we wandered up the California and Oregon coasts to home.
The swim was fantastic, and we had a great time in San Fran, but I think I found my endurance limit. 10 days, with the kind of riding we did (crossed the mountains from the I-5 corridor to the coast several times), was too much.
The effect of no testosterone is really getting to be a pain.
I kind of new that I was running on fumes a couple of days from home. But by that time there really wasn't much I could do other than soldier on.
But when I got home it hit me like a ton of bricks. When I get exhausted it throws my entire system for a loop. I feel tired, but have trouble sleeping. I feel like I run a low-grade fever. My body temperature regulation (from the hypothalamus) is . . . well, buggy. I'm either too hot or too cold. And not like, "Oh, I'm warm. Turn on the fan." More like piling on sweaters and blankets, or breaking out in a cold sweat.
So, that was how I spent my weekend and the 4th of July. Not a ton of fun, but I'm feeling much better now. Time to get on with treatment. The sooner I get this process started, the quicker I can get back on my meds and some semblance of 'normal'.
Well, as normal as it gets with a prolactinoma.
I go in a week from last Tuesday to get the seeds implanted.
That should be . . . interesting. But I'm more than ready.
The swim was fantastic, and we had a great time in San Fran, but I think I found my endurance limit. 10 days, with the kind of riding we did (crossed the mountains from the I-5 corridor to the coast several times), was too much.
The effect of no testosterone is really getting to be a pain.
I kind of new that I was running on fumes a couple of days from home. But by that time there really wasn't much I could do other than soldier on.
But when I got home it hit me like a ton of bricks. When I get exhausted it throws my entire system for a loop. I feel tired, but have trouble sleeping. I feel like I run a low-grade fever. My body temperature regulation (from the hypothalamus) is . . . well, buggy. I'm either too hot or too cold. And not like, "Oh, I'm warm. Turn on the fan." More like piling on sweaters and blankets, or breaking out in a cold sweat.
So, that was how I spent my weekend and the 4th of July. Not a ton of fun, but I'm feeling much better now. Time to get on with treatment. The sooner I get this process started, the quicker I can get back on my meds and some semblance of 'normal'.
Well, as normal as it gets with a prolactinoma.
I go in a week from last Tuesday to get the seeds implanted.
That should be . . . interesting. But I'm more than ready.
Tuesday, June 14, 2011
A Treatment Has Been Selected
What an interesting trip that was.
So I went to the Seattle Prostate Cancer Institute at Swedish on Monday.
Seems that I AM a candidate for seed implantation therapy. Contrary to what the radiology oncologist told me. Let's see, whom shall I trust? A nationally recognized treatment center, or a doctor in a small town that has invested heavily in an external beam radiation setup?
Yeah.
Brachythereapy it is! That means that on July 19th I go in for a little day surgery where they will implant 44 to 100 radioactive 'seeds' in my prostate. Doesn't that sound like fun? The next day I go back for a CT scan, and barring any complications I won't see the doc again for . . . 3 months. Then a visit at 6 months.
And that's it.
I don't want to get my hope up, but the incidence of incontinence, bladder and bower toxicity, and all the other happy things that go along with this condition are - according to the Doc - very, very low for me because of my age,general conditions, and symptoms.
No daily visits. No extended hospital stays. Nothing 'cut out'. How cool is that?
It was interesting as well because the nurse assigned to my case demanded that I get a second opinion on my pathology reports - which she is doing as we speak. None of the other Docs suggested that or even brought it up during my visits. You gotta love that.
I'll still have some of the same problems as traditional radiation. That being fatigue and nausea. Don't have to worry about the hair loss! Ha! Got ya on that one God!
It will be nice to get on with some kind of treatment. I'm REALLY starting to feel the effects of my lowered testosterone. The quicker we can start the treatment, the quicker I can start the injections again. At least we are putting this off until after my Alcatraz swim. I honestly don't know if I could swim it with the radiation and lowered testosterone.
So there you have it kids. I'll keep you updated.
So I went to the Seattle Prostate Cancer Institute at Swedish on Monday.
Seems that I AM a candidate for seed implantation therapy. Contrary to what the radiology oncologist told me. Let's see, whom shall I trust? A nationally recognized treatment center, or a doctor in a small town that has invested heavily in an external beam radiation setup?
Yeah.
Brachythereapy it is! That means that on July 19th I go in for a little day surgery where they will implant 44 to 100 radioactive 'seeds' in my prostate. Doesn't that sound like fun? The next day I go back for a CT scan, and barring any complications I won't see the doc again for . . . 3 months. Then a visit at 6 months.
And that's it.
I don't want to get my hope up, but the incidence of incontinence, bladder and bower toxicity, and all the other happy things that go along with this condition are - according to the Doc - very, very low for me because of my age,general conditions, and symptoms.
No daily visits. No extended hospital stays. Nothing 'cut out'. How cool is that?
It was interesting as well because the nurse assigned to my case demanded that I get a second opinion on my pathology reports - which she is doing as we speak. None of the other Docs suggested that or even brought it up during my visits. You gotta love that.
I'll still have some of the same problems as traditional radiation. That being fatigue and nausea. Don't have to worry about the hair loss! Ha! Got ya on that one God!
It will be nice to get on with some kind of treatment. I'm REALLY starting to feel the effects of my lowered testosterone. The quicker we can start the treatment, the quicker I can start the injections again. At least we are putting this off until after my Alcatraz swim. I honestly don't know if I could swim it with the radiation and lowered testosterone.
So there you have it kids. I'll keep you updated.
Wednesday, June 8, 2011
Fudge
So, got the word yesterday that Loma Linda, and the Proton Beam Therapy, is definitely not in my future.
That leaves me with either the seed implant therapy, or the external beam radiation therapy.
I'm not really enthused with either of them, but they are both preferable to surgery.
Who knew cancer would be such a pain? I didn't sign up for this, and I would definitely like to speak to the management. I've been calling for ages, but no one seems to answer.
So that's where I stand. It's a bit of a surreal life right now. I have my book signing tomorrow night at the Mint in Enumclaw, and I have my 'Escape from Alcatraz' swim on the 25th of this month. The yin and yang of life.
And I'm REALLY beginning to feel the effects of lowered testosterone. I'm back to the way I was a few years ago. Tired, workouts are drastically reduced, recovery time is longer, etc. Damn brain tumor.
Time to get some treatment underway so that I can get it over with. As they say, 'a job begun is half done.'
As I think I said before I'm seeing one more specialist next week, then I'll make my treatment decision.
If anyone has any advice I would love to hear it. Post in the comment section or send me email.
That leaves me with either the seed implant therapy, or the external beam radiation therapy.
I'm not really enthused with either of them, but they are both preferable to surgery.
Who knew cancer would be such a pain? I didn't sign up for this, and I would definitely like to speak to the management. I've been calling for ages, but no one seems to answer.
So that's where I stand. It's a bit of a surreal life right now. I have my book signing tomorrow night at the Mint in Enumclaw, and I have my 'Escape from Alcatraz' swim on the 25th of this month. The yin and yang of life.
And I'm REALLY beginning to feel the effects of lowered testosterone. I'm back to the way I was a few years ago. Tired, workouts are drastically reduced, recovery time is longer, etc. Damn brain tumor.
Time to get some treatment underway so that I can get it over with. As they say, 'a job begun is half done.'
As I think I said before I'm seeing one more specialist next week, then I'll make my treatment decision.
If anyone has any advice I would love to hear it. Post in the comment section or send me email.
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